Before Freya was born I had hardly visited hospitals. When I was pregnant I remember hoping that we would get discharged the day she was born (or at the latest the day after) so that we could go home and start our lives as a family. Well, that didn’t … Continue Reading What is it like living in a hospital?
I have been meaning to post for a while but little miss Freya has been keeping me busy darting between the PICU and the ward… and most recently just by being a very happy and active baby requiring a lot of play time on the floor. The topic I have … Continue Reading Housing and sick kids (and what makes me very angry)
How a society takes care of its weakest is, as far as I am concerned, the right measure of how successful it is. Today in the UK thousands of families with disabled and/or chronically ill children are failed by the government and left to fend for themselves in the … Continue Reading Our story:Continuing care at home
Where to start? This journey started in June 2015. It was a Friday night and I was heavily pregnant. My contractions started. I got up, knowing that it should take some time before things got moving, so I decided to watch a bit of telly. Ha! Underestimation of the century. … Continue Reading Where to start?