The little lady's birthday is nearly upon us. Freya spent last night at hospital having a sleep study to check up how she is doing respiratory-wise. It's a bit of time since our admission at the respiratory wards and everyone was impressed how well Freya is doing - with the big two looming in front of [...]
hospitals
The (inevitable) political one
onElections. Whether you rejoice in the small government approach of the other side of the pond or rejoiced in the victory of the left in France there is a distinct smell of change in the air. Here in the UK parliamentary elections are around the corner. After the emotion provoking brexit referendum last year there are [...]
What is it like being rare?
on"Don't be afraid of different. Some of the most beautiful things in the world are different." A nurse who looked after Freya when she was a very ill baby In the grand casino of life my partner and I hit the jackpot of rare odds. Whereas statistics indicate that about 3% of babies are born with [...]
Listen to the mama bear
onIt's December and I am cautiously getting in the Christmas mood. We have had a good autumn, with just one emergency admission and managing little lady and winter bugs at home. But I do not want to get too excited, as I know that any little blip can land us at hospital over the holidays. [...]
A weekend away
onAfter five and half weeks of home time Freya fancied a break and we ended up at St Mary’s paediatric intensive care unit. After four nights we are back at home and overall it was a pretty good little break. A good little break at the PICU? Let me explain. Last Tuesday Freya was just [...]
