I sat around a meeting with four professionals sitting in a semi-circle around me. "I will not let you fail my daughter."  I repeated "I will NOT let you fail my daughter". And we went around in circles. "We are not asking you anything that is beyond reasonable expectation of parental care". "We will want [...]

Ugh. Just ugh. I have numerous times written about the bureaucratic nightmare living with a chronically ill child is and the endless battles we have faced in the last two years to ensure that Freya's needs are properly met, but the events of last couple of months take - like people far politer than me [...]