“107. Reviews of a child or young person’s continuing care should be an opportunity for assessment of needs and how they are being addressed by the care…… Read more “Here we go again: Cutting care packages illegally”
Category: doing things stupidly and expensively
Respite (or lack of thereof)
Definition of respite (by Merriam Webster) 1: a period of temporary delay 2: an interval of rest or relief We all know having kids transforms your life.…… Read more “Respite (or lack of thereof)”
Our experience of receiving public services from private companies: Who are the winners, who are the losers?
Use of private companies in providing healthcare functions is on the rise everywhere in the world. This is also true in the UK, that prides itself with…… Read more “Our experience of receiving public services from private companies: Who are the winners, who are the losers?”
Nasty woman
I sat around a meeting with four professionals sitting in a semi-circle around me. “I will not let you fail my daughter.” I repeated “I will NOT…… Read more “Nasty woman”
Stuck in the middle with you (musings about services that just aren’t delivered)
Last couple of months I have written a lot about the struggles we are currently facing getting Freya the services at home we need to keep her…… Read more “Stuck in the middle with you (musings about services that just aren’t delivered)”
Stupid is as stupid does
Ugh. Just ugh. I have numerous times written about the bureaucratic nightmare living with a chronically ill child is and the endless battles we have faced in…… Read more “Stupid is as stupid does”
The (inevitable) political one
Elections. Whether you rejoice in the small government approach of the other side of the pond or rejoiced in the victory of the left in France there…… Read more “The (inevitable) political one”
About anger
I wrote some time ago about fear, and how as a parent of a medically complex child fear has become a permanent resident in my life. There…… Read more “About anger”
A weekend away
After five and half weeks of home time Freya fancied a break and we ended up at St Mary’s paediatric intensive care unit. After four nights we…… Read more “A weekend away”
Team Freya 