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Team Freya

Team Freya

Fighting Freya's corner

Category: doing things stupidly and expensively

Here we go again: Cutting care packages illegally

“107. Reviews of a child or young person’s continuing care should be an opportunity for assessment of needs and how they are being addressed by the care…… Read more “Here we go again: Cutting care packages illegally”

02/05/201802/05/2018 by teamfreyablog

Respite (or lack of thereof)

Definition of respite (by Merriam Webster) 1: a period of temporary delay 2: an interval of rest or relief We all know having kids transforms your life.…… Read more “Respite (or lack of thereof)”

18/02/2018 by teamfreyablog

Our experience of receiving public services from private companies: Who are the winners, who are the losers?

Use of private companies in providing healthcare functions is on the rise everywhere in the world. This is also true in the UK, that prides itself with…… Read more “Our experience of receiving public services from private companies: Who are the winners, who are the losers?”

21/01/2018 by teamfreyablog

Nasty woman

I sat around a meeting with four professionals sitting in a semi-circle around me. “I will not let you fail my daughter.”  I repeated “I will NOT…… Read more “Nasty woman”

19/10/2017 by teamfreyablog

Stuck in the middle with you (musings about services that just aren’t delivered)

Last couple of months I have written a lot about the struggles we are currently facing getting Freya the services at home we need to keep her…… Read more “Stuck in the middle with you (musings about services that just aren’t delivered)”

30/08/201706/08/2019 by teamfreyablog

Stupid is as stupid does

Ugh. Just ugh. I have numerous times written about the bureaucratic nightmare living with a chronically ill child is and the endless battles we have faced in…… Read more “Stupid is as stupid does”

20/07/201729/07/2017 by teamfreyablog

The (inevitable) political one

Elections. Whether you rejoice in the small government approach of  the other side of the pond or rejoiced in the victory of the left in France there…… Read more “The (inevitable) political one”

15/05/201725/05/2017 by teamfreyablog

About anger

I wrote some time ago about fear, and how as a parent of a medically complex child fear has become a permanent resident in my life. There…… Read more “About anger”

19/10/201606/08/2019 by teamfreyablog

A weekend away

After five and half weeks of home time Freya fancied a break and we ended up at St Mary’s paediatric intensive care unit. After four nights we…… Read more “A weekend away”

08/09/2016 by teamfreyablog
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