“107. Reviews of a child or young person’s continuing care should be an opportunity for assessment of needs and how they are being addressed by the care…… Read more “Here we go again: Cutting care packages illegally”
Category: Care packages
Our experience of receiving public services from private companies: Who are the winners, who are the losers?
Use of private companies in providing healthcare functions is on the rise everywhere in the world. This is also true in the UK, that prides itself with…… Read more “Our experience of receiving public services from private companies: Who are the winners, who are the losers?”
Who cares about the carer?
It’s been a challenging week with our household coming down with yet another bug, this time flooring all three of us. The sickness in our home seems…… Read more “Who cares about the carer?”
Nasty woman
I sat around a meeting with four professionals sitting in a semi-circle around me. “I will not let you fail my daughter.” I repeated “I will NOT…… Read more “Nasty woman”
Thoughts about starting nursery
Autumn’s arrived to London and this means two things in our household. The snot season has officially opened with Freya spending three nights in the Paediatric Critical…… Read more “Thoughts about starting nursery”
Stuck in the middle with you (musings about services that just aren’t delivered)
Last couple of months I have written a lot about the struggles we are currently facing getting Freya the services at home we need to keep her…… Read more “Stuck in the middle with you (musings about services that just aren’t delivered)”
24/7
If you ask a parent of medically complex child what their life is like they will often tell you it’s one step forward and two steps back…… Read more “24/7”
Stupid is as stupid does
Ugh. Just ugh. I have numerous times written about the bureaucratic nightmare living with a chronically ill child is and the endless battles we have faced in…… Read more “Stupid is as stupid does”
A mistake… or something else? Feeling queasy about continuing care
It’s been overall a pretty crappy week. After the little lady’s fun-filled birthday celebrations I started feeling a bit funny. First I thought it was directly related…… Read more “A mistake… or something else? Feeling queasy about continuing care”
