Today marks the end of Mental Health Awareness week here in the UK. This year’s theme is stress, something many parents like me struggle with. A recent…… Read more “Mental Health Awareness week: Stress and hospital stays”
Category: Being a carer
Respite (or lack of thereof)
Definition of respite (by Merriam Webster) 1: a period of temporary delay 2: an interval of rest or relief We all know having kids transforms your life.…… Read more “Respite (or lack of thereof)”
Who cares about the carer?
It’s been a challenging week with our household coming down with yet another bug, this time flooring all three of us. The sickness in our home seems…… Read more “Who cares about the carer?”
Hopes and dreams
Couple weeks back on my morning facebook trawl I stumbled across a blog called “ordinary hopes” by a fellow special needs mom(https://ordinaryhopes.com/author/challengingexpectationsblog/). I had a look and…… Read more “Hopes and dreams”
Nasty woman
I sat around a meeting with four professionals sitting in a semi-circle around me. “I will not let you fail my daughter.” I repeated “I will NOT…… Read more “Nasty woman”
Thoughts about starting nursery
Autumn’s arrived to London and this means two things in our household. The snot season has officially opened with Freya spending three nights in the Paediatric Critical…… Read more “Thoughts about starting nursery”
A year older, a year wiser (?)
It was my birthday this week. Not a big one, but an opportunity to look back and see what life has brought us last year and what…… Read more “A year older, a year wiser (?)”
Stuck in the middle with you (musings about services that just aren’t delivered)
Last couple of months I have written a lot about the struggles we are currently facing getting Freya the services at home we need to keep her…… Read more “Stuck in the middle with you (musings about services that just aren’t delivered)”
24/7
If you ask a parent of medically complex child what their life is like they will often tell you it’s one step forward and two steps back…… Read more “24/7”
