Last couple of months I have written a lot about the struggles we are currently facing getting Freya the services at home we need to keep her alive & well, and have some sort of semblance of a life other than a desperate scramble to manage every day. Since Freya was born I've encountered many [...]
August 2017
24/7
onIf you ask a parent of medically complex child what their life is like they will often tell you it's one step forward and two steps back - though I think it's more like one step forward, twelve back, few side way steps and jump in the air - and this is very much what [...]
